CDH -

Congenital Diaphragmatic Hernia

Congenital Diaphragmatic Hernia, CDH, is a rare and often unexplained birth defect in which a hole in the diaphragm forms early in gestation. This opening allows abdominal organs to migrate into the chest cavity, restricting lung development to varying degrees. The severity of this condition exists on a spectrum, with outcomes differing for each child.

CDH occurs in approximately every 1 in 2,500 to 3,000 live births worldwide, a similar incidence rate to better-known and more widely funded conditions such as spina bifida and cystic fibrosis. Tragically, 50% of babies born with CDH will not survive past infancy. Those who do often face a lifetime of medical challenges, including multiple surgeries, prolonged hospital stays, respiratory complications, and ongoing specialized care.

With increased awareness, research, and funding, we can improve survival rates and long-term outcomes for these children and their families. Your support can make a meaningful impact in advancing treatment options, providing essential resources, and fostering hope for those affected by CDH.