Justus
Justus was born with a severe right side CDH in 2005. It was not diagnosed until birth, in an inadequate hospital in Alaska. With a zero percent chance of survival, and after the bad weather cleared .... 18 hours after birth.... He was life flighted to Emanuel Children’s Hospital.
Mom, stuck in Alaska with PIH was unable to fly to Portland and unsure if she would ever hold her baby alive.
He was pre ECMO and was scheduled to have the procedure on a Wednesday night in the Ladybug section of the NICU... That night, God touched him and stabilized him. No ECMO was needed.
Mom arrived at day 7, and he underwent surgery on day 9 with Dr. Davis Bliss.
Three months later he went home to Alaska. The following years included six surgeries, many hospital visits and a few failure to thrives. In May 2010, the family moved to the Portland area to live closer to the medical resources that he required. Justus turned 8 on March 13, 2013.